SCIENTIFIC AND MEDICAL ADVISORS

Dr. Saima Kayani

Scientific & Medical Advisory Member

Dr. Saima Kayani is a Child Neurologist with additional training in Medical Genetics. Her advanced training helps her better understand the clinical and basic molecular mechanisms of neurogenetic diseases.

Dr. Steven Gray

Scientific & Medical Advisory Member

Dr Steven Gray is an Associate Professor in the Department of Pediatrics at the University of Texas Southwestern Medical Center. His major focus is in AAV vector development to develop vectors tailored to serve specific clinical and research applications involving the nervous system. 

Dr. Berge Menassian

Scientific & Medical Advisory Member

Dr. Minassian is a pediatric neurologist whose clinical specialties are epilepsy, neurodegenerative diseases, and neurogenetic conditions

Dr. Minassian is the Chief of Child Neurology at UT Southwestern and also leads the Neurosciences Center at Children's Health in Dallas, TX. 

Dr. Qinglan ling

Scientific & Medical Advisory Member

Dr. Qinglan Ling is a postdoctoral researcher in the laboratory of Dr. Steven Gray at the University of Texas Southwestern Medical Center and has been leading preclinical studies to establish an AAV-based gene therapy strategy for SURF1-related Leigh syndrome.

dr. Volkmar Weissig

Scientific & Medical Advisory Member

Dr. Weissig is a Tenured Professor of Pharmacology and Chair of the Department of Pharmaceutical Sciences and a Professor of Biomedical Sciences at the Midwestern University College of Graduate Studies and Co-director of the Center of Excellence in Translational Cancer Research. He is the President of the World Mitochondria Society.

Dr. Joana Matos

Patient Registry Advisor

Dr Joana Matos has been working in the biomedical field for more than 15 years and is also volunteering her expertise to help the Rare Disease community. 

Kevin w. Freiert, MBA

Patient Registry Advisor

After retiring from Pfizer, Kevin started Salem Oaks, an organization that empowers patients to shape the future of medicine by providing educational programs about Drug Discovery and Development.

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