fighting for a cure

 Please join us on our quest to find a cure for Leigh syndrome, a rare, terminal neurodegenerative disease.  This devastating disease primarily affects infants and young children.  We need you to help us turn hope into action!




Mitochondria are the “powerhouse” of the cells that produce 90% of the energy needed to sustain life.  In mitochondrial disorders, the mitochondria’s ability to convert food and oxygen into energy is impaired because of a genetic mutation in the DNA.  We all have two types of DNA in our bodies.  The nuclear DNA is found in the cell’s nucleus and is inherited from both our mother and father.  Mitochondria also have DNA, inherited from mothers. Because both types of DNA are responsible for the structure and function of the mitochondria, mutations in either can cause mitochondrial disorders. Mutations can be inherited from parents or can occur randomly in a child called de novo mutations.  

our mission

The Cure Mito Foundation is dedicated to advancing education and research for Leigh syndrome and mitochondrial disease.  Our mission is to empower families to come together with a common goal of finding treatments, and ultimately a cure, for this devastating disease. Patients are at the heart of everything we do.

kids battling surf1


Our Foundation’s effort to find a cure for SURF1 Leigh syndrome is accomplished by funding the efforts of doctors and researchers who share our passion and relentless drive to fight this devastating disease.   100% of your donations are tax deductible and will go directly to research dedicated to SURF1 Leigh syndrome. Cure SURF1 Foundation is a 501(c)(3) nonprofit organization.  We thank you for your support!