Young Woman Contemplating


Supportive Genetic Counseling and Bereavement Support Services:

    Listening, Reflecting, Healing

Courageous Parents Network Resources:

   Coping, Family, and Relationships

    Communicating effectively and compassionately to help siblings cope - printable guide

     End of Life and Bereavement

rare siblings project

An exploration of what it means to have a sibling with a life-threatening illness.


NORD Caregiver respite program:

Through the program, NORD will provide financial assistance to eligible caregivers covering up to $500 annually so that a respite caregiver may be secured to care for a loved one.


Understanding Interventions

Advocating for Your Child

Introduction to Pediatric Palliative Care - printable guide