Crowd Cheering

OTHER MITO efforts

The Champ Foundation 

Mission of the Champ Foundation is to support research to find treatment and a cure for SLSMDS (Pearson syndrome, KSS, CPEO).

Cure ECHS1 

Cure ECHS1's mission is to fund ECHS1 gene therapy research at UT Southwestern Medical Center in Dallas, Texas. As there is no cure or treatment for our children’s disease, gene therapy is the only chance for several rare genetic diseases such as ECHS1 Leigh-like syndrome. 

A Cure for Ellie 

Mission of a Cure for Ellie is to spread awareness about LBSL (Leukoencephalopathy with Brain Stem and Spinal Cord Involvement and Lactate), offer support to other families and drive research.

Daphne's lamp 

Through financial aid and advocacy, the organization seeks to improve the quality of life of those affected by these diseases by improving their access to prescription drugs, vitamins, supplements, orthotics and mobility devices.

jaxson's cure

Our goal is to slow the progression of C12orf65 Leigh syndrome while working towards a cure for Jaxson and future generations. Gene therapy looks to be a promising life-extending treatment for Leigh syndrome (C12orf65). The field of gene therapy has gone through remarkable breakthroughs these last few years and offers incredible promise for rare genetic diseases such as C12orf65 Leigh Syndrome.

MEPAN Foundation 

MEPAN foundation is dedicated to discovering treatments for MEPAN Syndrome.  


MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease.


Canada's only patient-focused organization for mitochondrial disorders. Active in communities across the country, our mission is to improve the treatment, quality of life, and long-term outlook for all individuals affected by mitochondrial disease. MitoCanada, through greater public awareness, seeks to promote early diagnosis, patient and clinician education and to fund advancements in new treatments until a cure is found.

My Mito Mission 

Mission of My Mito Mission is to raise awareness, research and support for everyone affected – and to do so primarily by empowering affected families to run their own person-centred, localised missions rallying their families, friends and local communities

NUBPL Foundation 

Mission of NUBPL Foundation is to raise awareness and fund research towards the development of life-saving treatments and a cure for NUBPL.

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