Happy Family


We are stronger together. Our community has many committed and dedicated organizations and we are happy to share them with you. 

The Champ Foundation 

to support research to find treatment and a cure for SLSMDS (Pearson syndrome, KSS, CPEO).

A Cure for Ellie 

mission to spread awareness about LBSL (Leukoencephalopathy with Brain Stem and Spinal Cord Involvement and Lactate), offer support to other families and drive research.

Daphne's lamp 

Through financial aid and advocacy, the organization seeks to improve the quality of life of those affected by these diseases by improving their access to prescription drugs, vitamins, supplements, orthotics and mobility devices.


to raise awareness, support research and offer support for those affected with LHON (Leber’s Hereditary Optic Neuropathy). 

MEPAN Foundation 

dedicated to discovering treatments for MEPAN Syndrome.  

Miracles for Mito 

Miracles for Mito was started in the corridors of The Children’s Hospital Colorado by parents whose families were impacted by mitochondrial disease. Today, Miracles for Mito is an established nonprofit organization dedicated to assisting other families in the Rocky Mountain Region who have been diagnosed or have a suspected mitochondrial disease.


MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease.


Canada's only patient-focused organization for mitochondrial disorders. Active in communities across the country, our mission is to improve the treatment, quality of life, and long-term outlook for all individuals affected by mitochondrial disease. MitoCanada, through greater public awareness, seeks to promote early diagnosis, patient and clinician education and to fund advancements in new treatments until a cure is found.

My Mito Mission 

to raise awareness, research and support for everyone affected – and to do so primarily by empowering affected families to run their own person-centred, localised missions rallying their families, friends and local communities

NUBPL Foundation 

mission is to raise awareness and fund research towards the development of life-saving treatments and a cure for NUBPL.