Happy Family

SOBRE NÓS

Join us as a partner family - let's make a difference together!

For more information or to join please email us at info@curemito.org

Ferencz Family - Cure Mito Partner
FERENCZ FAMILY

Partner Family - Romania

Nora is 6 years old and the only child diagnosed with ECHS1 Deficiency in Eastern Europe. Ferencz family is hoping that a custom gene therapy will be developed in time to save Nora’s life, after the painful loss of her sister, Anna, age 1.

ECHS1 deficiency - Community for finding a cure - Gene therapy (cure-echs1.com)

Proksch Family - Cure Mito Partner
Jasmin & Stephan Proksch
Kissinger family - Cure Mito Partner
Família Kissinger
Lloyd family - Cure Mito Partner

LLOYD FAMILY
Partner Family - Australia

 

When Lola was diagnosed in the January of 2017 with Surf1 deficiency, at 2.5years old, Lloyds' whole world changed. From that day they promised to fight to help find a treatment or cure for Lola and other children with Leigh syndrome. Lola is now 7 and although mito has taken some abilities from her, she never complains and is always smiling or laughing. 

Nikolaev Family - Cure Mito Partner
família nikolaev
Emerson Family - Cure Mito Partner
família EMERSON
Banasiak Family - Cure Mito Partner
Fedorenki Family - Cure Mito Partner
família FEDORENKO
Família BANASIAK
Yanukovich Family - Cure Mito Partner
família yanukovich
Havlikova Family - Cure Mito Partner

HAVLÍKOVÁ FAMILY

Partner Family -  Czech Republic

 

"Our family has four members. Mom Veronika, dad Miroslav and twins Eliška and Amálie. Amálie has a mitochondrial encephalopathy-SURF1 protein deficiency. Amálka is a huge warrior and every day she proves it with her beautiful smile. We try to help her on her journey as much as we can. We will never lose hope that we will find a cure and a way to save her life."

Morris Family - Cure Mito Partner

MORRIS FAMILY

Partner Family -  USA

 

The Morris family is from Seattle, Washington. Colson lived with mitochondrial disease until he was four years old, and received excellent care at Seattle Children's Hospital. Yat: https://courageousparentsnetwork.org/blog/author/liz-morris  

Alvarez Barral family - Cure Mito Partner

ÁLVAREZ BARRAL FAMILY

Partner Family -  Argentina

 

"We fight to cure them, to help others, we fight so that science does not abandon us, that medicine accompanies us saving the lives of our own, we fight to continue living and enjoying. We also fight for others, because we have suffered along the way and we know what these diagnoses hurt our souls."

Melling Family - Cure Mito Partner

MELLING FAMILY

Partner Family -  Australia

 

Archie has ECHS1d, a Leigh-like syndrome, he was diagnosed at 13 months when he had a sudden onset of symptoms, during a viral illness. He is now quadriplegic, non-verbal and PEJ fed. He is a mostly happy little man, who attends school, Physio, OT and speech therapy.

Raghavendran Srikanthan - Cure Mito
Família guerreira
Maximo Family - Cure Mito Partner

MAXIMO FAMILY
Partner Family - France

Gabriel is 10 years old and has Leigh Syndrome caused by MT-ND5 gene. Gabriel's family is dedicated to advancing reserach of his gene mutation for him and all other affected children.

Conner Family - Cure Mito Partner

CONNER FAMILY
Partner Family -  USA

 In 2016, Kendall started becoming unsteady in her balance and was diagnosed with Leigh Syndrome at 2.5 years old caused by a de novo mutation in her mitochondrial DNA at m. 3688 G>A.  Kendall's mother Taylor Conner says, "It's a cruel, progressive disease, but Kendall is a very determined child which motivates us to find a cure.

Jones Family - Cure Mito Partner
Família guerreira
Paredes Family - Cure Mito Partner

PAREDES FAMILY
Partner Family - Ecuador

""Emmanuel is the best thing that has happened to us in our lives. We love everything about him, to the point that we love every little development or challenge that he overcomes in his health; and one could even say that we love even his illness for the simple fact of being part of it."

Mancilla Family - Cure Mito Partner

MANCILLA FAMILY
Partner Family - Mexico

Leonardo's family says that the disease affects everything in the family - psychologically, economically and morally. They always live with FAITH but at the same time with fear because they don't know how many more years their child will live and if tomorrow he will not be there.

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FOX FAMILY
Partner Family - UK

Harriet was diagnosed with Leigh Syndrome MT-ND6 in March 2021 not long after her 2nd Birthday. She’s always laughing and cuddling her big sister who is currently helping her learn the alphabet. Although Harriet now uses a wheelchair she is trying to get the strength back in her legs and not giving up.

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KING FAMILY
Partner Family - USA


On May 19, 2022.. a day we will never forget, Cooper at 15.5mo was diagnosed with Leigh Syndrome (MT-ATP6 8993T>G). With the devastating news that our sweet baby boy may be taken from us far too soon, we set out to learn and teach everyone every single thing about Leigh Syndrome and Mitochondrial Diseases!! 

 https://www.Facebook.com/allaboutcooperking

Ajude nossos filhos hoje

O esforço de nossa Fundação para encontrar uma cura para a síndrome de Leigh e a doença mitocondrial é realizado financiando os esforços de médicos e pesquisadores que compartilham nossa paixão e impulso implacável para combater essa doença devastadora.  100% de suas doações são dedutíveis de impostos e irão diretamente para apoiar pesquisas.  A Cure Mito Foundation é uma organização sem fins lucrativos 501(c)(3).  Nós agradecemos por seu apoio!