Dear Friends, Partners, and Supporters of the Cure Mito Foundation, |
We’re excited to begin a new year and share our January updates with you, including the release of our annual report. Looking ahead, we’re planning to launch a patient priorities survey, share detailed updates on the research we fund, and convene a research retreat and workshop - along with more to come in 2026.
As we move forward, we do so with both hope and heavy hearts, having marked the end of one year and the beginning of another while grieving the loss of two children in our community - one in December and one in January. We remain deeply committed to advancing research, care, and support for the families we serve. Thank you for being part of our mission and for your continued support. With gratitude,
The Cure Mito Foundation Team |
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"Think higher, feel deeper." |
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| OUR ANNUAL REPORT FOR 2025 IS READY! |
We’re excited to share our newly released annual report, which captures key milestones across research, data, and family engagement. Thank you to everyone who helped make this progress possible. |
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| JOIN THE PATIENT REGISTRY |
If your loved one has Leigh syndrome - or has passed away from it - please consider joining the world’s largest Leigh Syndrome Global Registry. All findings are shared back with the community - because your experiences matter. |
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| SPREAD THE LOVE THIS VALENTINE'S DAY |
Valentine’s Day is just around the corner, and we’re excited to share new, limited-time merchandise now available in our Bonfire store! Show your love to someone special while supporting the Cure Mito Foundation’s mission. Every purchase helps fuel critical research and community support. Visit our store and share the love—today and every day. |
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SYNLEIGH RESEARCH CONSORTIUM |
We’re proud to be part of SynLeigh, a new international research consortium funded by the European Rare Diseases Research Alliance, focused on accelerating therapeutic development for Leigh syndrome spectrum disorders. SynLeigh will advance two therapies with Orphan Drug Designation from the European Medicines Agency using an integrated preclinical platform to help move promising treatments toward clinical trials. |
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The consortium brings together researchers and patient organizations from across Europe and North America, including Fraunhofer (Germany), Parc Taulí Institute (Spain), University of Luxembourg, McGill University (Canada), University of Latvia, Istituto Neurologico Carlo Besta (Italy), International Mito Patients (IMP), Cure Mito Foundation, and Mitocon (Italy). |
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We’re sharing a beautiful reflection from Emily Andersen—one of our mito moms and our Support & Education Director. Written last year, this piece reflects on two years since her son Jack’s diagnosis. READ THE FULL BLOG POST HERE
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We are heartbroken to share the loss of sweet Wally, who brought so much joy and love to everyone who knew him. We are holding his family close and grieving alongside the many lives he touched. We will continue fighting for better treatments and a cure in Wally’s memory. |
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| TOP-RATED NONPROFIT AWARD |
We’re excited to end 2025 with a Top-Rated Award from @GreatNonprofits — our 4th year in a row, made possible by the reviews from our community. |
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We’re encouraged to see CNBC launch CNBC Cures, a new initiative raising awareness and pushing for better outcomes for people living with rare diseases. We’re especially grateful to Becky Quick for sharing her family’s story - we hope to find ways to collaborate in support of the rare disease community.
LEARN MORE |
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Help us reach more compassionate individuals by sharing this newsletter with friends and family. By spreading the word, you help expand our community and support individuals and families affected by Leigh syndrome.
Every shared message helps raise awareness and strengthens the support available to families affected by Leigh syndrome. |
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Cure Mito Foundation is a 501(c)(3) nonprofit organization founded by parents and driven by a deep commitment to finding a cure for Leigh syndrome and other mitochondrial diseases. Your tax-deductible donation directly supports research focused on advancing treatments and improving the lives of those affected. For many ways to give, please click here:
https://www.curemito.org/ways-to-give |
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