The Cure SURF1 Foundation was founded in 2018 by a group of families determined to fight for our children’s lives. Each of us has a young child diagnosed with SURF1 Leigh syndrome. Each of us has been told by doctors that there is no treatment, no cure, and no hope. And each of us has refused to accept this as a final answer.
In 2021, after successfully blazing the trail for SURF1 gene therapy at UTSW we decided to expand our efforts and changed the name of our foundation from the Cure SURF1 Foundation to the Cure MITO Foundation. Our primary focus is advancing research towards a cure for Leigh syndrome and eventually for mitochondrial disease as a whole. A successful outcome will mean not only hope for our own children, but also life-saving treatments for future generations impacted by this disease.
The Cure Mito Foundation is dedicated to advancing education and research for Leigh syndrome and mitochondrial disease. Our mission is to empower families to come together with a common goal of finding treatments, and ultimately a cure, for this devastating disease. Patients are at the heart of everything we do.
Who We are
Doug & Kasey Woleben
Doug & Kasey have started several
non-profits to save their son, Will, and other children facing mitochondrial diseases like SURF1 Leigh syndrome.
Courtney & Jacob Boggs
After their daughter, Emma Grace, was diagnosed with SURF1 Leigh Syndrome, they made it their life's mission to raise awareness and funding for LS.
Sophia has over 15 years of experience in pharmaceutical industry and is volunteering her expertise to help the rare disease community, in memory of her daughter, Miriam.
Jasmin & Stephan Proksch
After their son, Ben was diagnosed with Leigh syndrome in November of
2019, Proksch family made it their mission to end Leigh syndrome. It is a Their greatest wish is to put an end to this disease and enable children to have a life.
Help our kids today
Our Foundation’s effort to find a cure for Leigh syndrome and mitochondrial disease is accomplished by funding the efforts of doctors and researchers who share our passion and relentless drive to fight this devastating disease. 100% of your donations are tax deductible and will go directly to support research. The Cure Mito Foundation is a 501(c)(3) nonprofit organization. We thank you for your support!