Three Girls

accelerating research for Leigh Syndrome

 Please join us on our quest to find a cure for Leigh syndrome and other mitochondrial diseases.  These devastating diseases primarily affect infants and young children.  We need you to help us turn hope into action!

FIGHT · RESEARCH · HOPE · CURE

 

About MITOCHONDRIAL DISEASE

Mitochondria are the “powerhouse” of the cells that produce 90% of the energy needed to sustain life.  In mitochondrial disorders, the mitochondria’s ability to convert food and oxygen into energy is impaired because of a genetic mutation in the DNA.  We all have two types of DNA in our bodies.  The nuclear DNA is found in the cell’s nucleus and is inherited from both our mother and father.  Mitochondria also have DNA, inherited from mothers. Because both types of DNA are responsible for the structure and function of the mitochondria, mutations in either can cause mitochondrial disorders. Mutations can be inherited from parents or can occur randomly in a child called de novo mutations.  

our mission

The Cure Mito Foundation is dedicated to advancing education and research for Leigh syndrome and mitochondrial disease.  Our mission is to empower families to come together with a common goal of finding treatments, and ultimately a cure, for this devastating disease. Patients are at the heart of everything we do.

OUR PROJECTS

GENe THERAPY 

collaboration with top researchers at UT Southwestern Medical Center in Dallas, TX to develop an AAV9 based gene therapy for the treatment of SURF1 Leigh syndrome.

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ALLSTRIPES

Cure Mito Foundation

& AllStripes are partnering to create a research database that will power multiple new research efforts for SURF1 Leigh syndrome.

CORIELL

Cure Mito Foundation & Coriell are working together to create a research resource, a centralized and easily accessible biobank of useful tools needed for scientific studies.

REGISTRY

Please join our patient registry for Leigh Syndrome families 

making
an impact

Since our founding in 2018, Cure Mito Foundation has raised more than $1 Million and has partnered with over 130 families in 17 countries.

$1Million+

Raised Since 2018

Over 130+

Partner Families Worldwide

Meet our kids

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You can help advance research today. 

Our Foundation’s effort to find a cure for Leigh syndrome and other mitochondrial diseases is accomplished by funding the efforts of doctors and researchers who share our passion and relentless drive to fight this devastating disease.   100% of your donations are tax deductible and will go directly to research dedicated to mitochondrial diseases. Cure Mito Foundation is a 501(c)(3) nonprofit organization run by parents who volunteer their time to search for a cure.

 We thank you for your support!

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