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 Please join us on our quest to find a cure for Leigh syndrome and other mitochondrial diseases.  These devastating diseases primarily affect infants and young children.  We need you to help us turn hope into action!


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our mission

Our mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.

leigh syndrome global patient registry

If you or your loved one have Leigh Syndrome or your loved one has passed away from Leigh Syndrome - please join Leigh Syndrome Global Registry

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ABOUT LEIGh sYNDROME is a first of its kind informational website about Leigh syndrome with resources and support for both families and healthcare professionals.

*total updated 8/12/23

$4.5M GOAL!

Your help is crucial in raising funds and awareness for our children. Every donation, large and small, gets us closer to a cure.
Only $3M is needed to reach our goal of a Formal Toxicology Study, GMP Drug Manufacturing, and OUR ULTIMATE GOAL OF A CLINICAL TRIAL!

Time is not on our side. Leigh syndrome is a progressive neurological disease that slowly robs children of their abilities, and eventually their lives. The sooner we reach our $3M goal the faster we get to a clinical trial. Doctors at UT Southwestern are working as quickly as possible, but funding is needed for research to progress.

Thank you for your HELP!!

partner with us

By joining us as a partner family, we can make a difference together!

Tees, hoodies, tanks, and more!

Wear your support and shop our Mito Mom and Cure Leigh Syndrome shirts and more at our Bonfire store.  Your purchases will help raise awareness and support Leigh syndrome research. We have options for all, whether you're a Mito Mom, Leigh syndrome warrior, or support someone who is.

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You can help advance research today. 

Our Foundation’s effort to find a cure for Leigh syndrome and other mitochondrial diseases is accomplished by funding the efforts of doctors and researchers who share our passion and relentless drive to fight this devastating disease.   100% of your donations are tax-deductible and will go directly to research dedicated to mitochondrial diseases. Cure Mito Foundation is a 501(c)(3) nonprofit organization led by parents who volunteer their time to search for a cure.

 We thank you for your support!

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