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Annual Leigh Syndrome Symposium

EMPOWER & INSPIRE

Our 3rd Leigh syndrome symposium was held virtually on September 17th

  • 475 Attendees Registered
  • 268 Attended Live
  • 76 attendees used the translation platform to listen in 15 different languages

Thank you to all the speakers and attendees!

View Recordings
Happy girl smiling affected by Leigh sydrome

Aadya, USA

Newsletters

September 2024

Reflecting on Mito Awareness Month and Unveiling Our New Website!

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August 2024

Register for the Leigh Syndrome Symposium, Join Color for Mito, and More!

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July 2024

Leigh syndrome symposium agenda, Color for Mito, and other July news!

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June 2024

Leigh syndrome symposium, C-Path mito taskforce updates, Music for Mito and other June news!

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May 2024

New grants, Collaborations, Care Packages, Symposium Registration and more!

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April 2024

Registry data available in OMOP, Leigh syndrome symposium registration is open, and more news!

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March 2024

PDCD registry partnership, ECHS1 research, C-path mito taskforce is growing, Rare disease day recap, and more!

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February 2024

Rare Disease Day, Rare Bears, Registry and C-Path updates!

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Announcement

Announcement: Our 2nd Registry Paper is PUBLISHED - Interoperability of Leigh Syndrome Patient Registry Data with Regulatory Submission Standards

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January 2024

Mito taskforce, New patient resources, 2024 plans!

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Announcement

Announcement: C-Path Mitochondrial and Metabolic Diseases taskforce is LAUNCHED!

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December 2023

🌟 Closing out 2023!

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November 2023

🌟 New published paper and more news this November!

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October 2023

Communities for a Cure and More October News!

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July 2023

Register for Leigh syndrome symposium, C-path press release, new resource, and more news!

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June 2023

Celebrating 2 years, new website about Leigh syndrome is live, patient registry results presented at Euromit, Conference is coming up

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Announcement

Announcement! Aboutleighsyndrome.com is LIVE!

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September 2023

LS symposium recap, Mito Awareness Week, and lots of gratitude this September!

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Announcement

Announcement: Leigh Syndrome Global Patient Registry paper is PUBLISHED!

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August 2023

Mito awareness week, LS symposium, Mito meeting with C-path, Free genetic testing, and more updates!

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May 2023

Our story is featured on WebMD and more news!

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April 2023

Drug repurposing updates, conference updates, patient registry updates, and more!

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March 2023

Leigh Syndrome medical network, family planning guide, clinical trials page, research studies opportunities, conference, and much more!

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February 2023

Rare Disease Day 2023 a week away from today!

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January 2023

Corporate advisory council announcement, Empower and Inspire conference is back in 2023 - register now!

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December 2022

New announcements and 2022 wrap-up!!!

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Announcement

Giving Tuesday 2022

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November 2022

Drug Repurposing News, Patient Registry Updates, and New Ways to Give!

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March 2022

Registry giveaway, Birthday club, and other news!

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February 2022

Cure Mito Foundation News

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January 2022

Cure Mito Foundation News

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June 2022

Please register for the conference, registry updates, and more!

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May 2022

REGISTRATION IS OPEN - EMPOWER AND INSPIRE: Understanding and Accelerating Research for Leigh Syndrome

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April 2022

SAVE THE DATE - EMPOWER AND INSPIRE: Understanding and Accelerating Research for Leigh Syndrome

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October 2022

Conference recap, Registry latest news, Research opportunity, and more updates!

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September 2022

Conference coming up, Grant announcements, Fundraiser, Research opportunities, and more!

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August 2022

Conference agenda ready, patient registry, and other news!

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November 2021

Cure Mito Foundation News

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October 2021

Cure Mito Foundation News

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