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FAMILY BLOG
This page is a place to share stories and reflections written by or about families and children whose lives have been affected by mito
Matt Pinder's story - Matt is as adult living with Leigh syndrome. Read his story here.
CPN | An Unexpected Message Six Years Later (courageousparentsnetwork.org)
CPN | The Endurance We Didn't Choose (courageousparentsnetwork.org)
Aadya Kiran is a little girl with Leigh Syndrome. Her mom is writing a blog about Aadya's updates:
Language that builds a bridge: "Please help me understand"
Getting a terminal diagnosis for my baby
To anyone in medicine: This is why listening matters
Do you have a story you would like to share?
Please contact us!
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