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Helping Hands

Get  Involved

There're many ways you can make a difference! 


join leigh syndrome patient registry


If you or your loved one have been diagnosed with Leigh Syndrome, we encourage you to enroll in a patient registry and help bring patients, families, and researchers together to gain a better understanding of Leigh Syndrome.

Anyone in the world can join and respond to two surveys describing their experience with Leigh Syndrome and those living in the US, Canada, and UK can contribute their de-identified medical records towards research. All findings will be shared back with the community.


For more information and to enroll please CLICK HERE.


Share your story or a blog post to be published on our family blog

join parents and caregivers Facebook group

If you are a parent or a caregiver to someone with Leigh syndrome or your loved once passed away from Leigh syndrome, please join a Facebook group

join us as a partner family

As a partner family you will:

    Have an opportunity to participate and have a voice in Cure Mito initiatives as well as propose new ones

    Participate in quarterly meeting with other partner families

    Participate in Facebook group for partner families

    Meet caring and dedicated families and individuals from around the world

If you're interested in partnering with us or for more information please email us at


Do you have expertise and skills you wish to contribute to help advance our mission? Please reach out to us at and let us know about your skills and time availability!

OPEN a fund in the honor or memory of your loved one

To open your own fund please  CLICK HERE.


Cure Mito is a parent-led 501(c)(3) foundation, led fully by volunteers. 100% of funds raised are used towards research. All donations are tax deductible. To make a donation please CLICK HERE.

print and share flyers

Share our printable flyers with your medical team, family and friends

shop are raise awareness

Shop in our Bonfire store

add your doctors to the medical providers directory

Add your doctors of any specialty, as well as genetic councelors, therapists familiar with Leigh syndrome to the medical providers directory


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Subscribe to our email updates

we look forward to connecting with you!!!

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