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Helping Hands

Get  Involved

There're many ways you can make a difference! 



Cure Mito is a parent-led 501(c)(3) foundation, led fully by volunteers. 100% of funds raised are used towards research. All donations are tax deductible. To make a donation please CLICK HERE.


Do you have skills you wish to contribute to help advance our mission? Please reach out to us at!

join us as a partner family

As a partner family you will:

    Have an opportunity to participate and have a voice in Cure Mito initiatives as well as propose new ones

    Participate in quarterly meeting with other partner families

    Participate in Facebook and google groups for partner families

    Meet caring and dedicated families and individuals from around the world

If you're interested in partnering with us or for more information please email us at

join leigh syndrome patient registry


If you or your loved one have been diagnosed with Leigh Syndrome, we encourage you to enroll in a patient registry and help bring patients, families, and researchers together to gain a better understanding of Leigh Syndrome.

Anyone in the world can join and respond to two surveys describing their experience with Leigh Syndrome and those living in the US, Canada, and UK can contribute their de-identified medical records towards research. All findings will be shared back with the community.


For more information and to enroll please CLICK HERE.


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we look forward to connecting with you!!!

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