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​ACCELERATING RESEARCH FOR LEIGH SYNDROME

Read about Will, Delta, and Aadya here

If you or your loved one have been diagnosed with Leigh syndrome within the past 6 months, we want to extend our support to your family by offering a care package. This opportunity is generously sponsored by an anonymous donor. It is currently available to US families only. Please request your package HERE.

WHO WE ARE

We are a leading patient advocacy organization dedicated to advancing research of Leigh syndrome and empowering and supporting affected families worldwide. Our mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.

what we do

We fund research and provide comprehensive resources for the community, including a global patient registry for Leigh syndrome, an educational website AboutLeighSyndrome.com, Leigh syndrome healthcare providers directory, annual Leigh syndrome virtual symposium, family planning guidesupport resources for patients, and opportunities for free genetic testing, among other initiatives.

WHAT IS LEIGH
SYNDROME

Leigh syndrome is a most common pediatric mitochondrial disease. It is a neurodegenerative disease causing the loss of

abilities to walk, talk, swallow. Leigh syndrome can be caused by 110+ nuclear and mitochondrial DNA mutations. Approximately 1 in 40,000 are affected. 

leigh syndrome global patient registry

If you or your loved one have Leigh Syndrome or your loved one has passed away from Leigh Syndrome - please join Leigh Syndrome Global Registry

MEET OUR KIDS

ABOUT LEIGh sYNDROME

AboutLeighSyndrome.com is a first of its kind informational website about Leigh syndrome with resources and support for both families and healthcare professionals.

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RECENT NEWS

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You can help advance research today. 

Our Foundation’s effort to find a cure for Leigh syndrome and other mitochondrial diseases is accomplished by funding the efforts of doctors and researchers who share our passion and relentless drive to fight this devastating disease.   100% of your donations are tax-deductible and will go directly to research dedicated to mitochondrial diseases. Cure Mito Foundation is a 501(c)(3) nonprofit organization led by parents who volunteer their time to search for a cure.

 We thank you for your support!

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