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New resource for Leigh syndrome community is coming soon!

We are excited to announce a new resource for the Leigh syndrome community. This website will be dedicated to LS education, research, support, and more for both patients and physicians.

Please sign up to be notified when the site goes live and share with us what information and resources are important to you! Additionally, please reach out to us at with any questions, comments, or collaboration inquiries.

A huge thank you to PTC Therapeutics, Inc. for their generous sponsorship to make this resource possible for the global Leigh syndrome community!

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