sophiazilberMay 21, 20231 min readOur story is featured on WebMD!We are so thrilled to see our work and our patient registry for Leigh syndrome recognized at WebMD! Please check out the article below and share!https://www.webmd.com/children/features/rare-disease-families-advocate-for-change
We are so thrilled to see our work and our patient registry for Leigh syndrome recognized at WebMD! Please check out the article below and share!https://www.webmd.com/children/features/rare-disease-families-advocate-for-change
New Paper: Interoperability of Leigh Syndrome Patient Registry Data with Regulatory Submission Standards
C-Path to Lead New Task Force Aimed at Accelerating Drug Development for Mitochondrial and Inherited Metabolic Diseases
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