Stay Up To Date With Cure Mito
Annual Leigh Syndrome Symposium
EMPOWER & INSPIRE
Our 3rd Leigh syndrome symposium was held virtually on September 17th
- 475 Attendees Registered
- 268 Attended Live
- 76 attendees used the translation platform to listen in 15 different languages
Thank you to all the speakers and attendees!
Aadya, USA
Newsletters
April 2025
Clinical Research ID (CRID), 4th Annual Leigh Syndrome Symposium, and more news!
Read NewsletterMarch 2025
Inside: New Leigh Syndrome Video, Research Resources, Sibling Session, Biorepository News and More!
Read NewsletterFebruary 2025
It's Rare Disease month! Also C-path and Patient Registry Updates, Community News, and More!
Read NewsletterJanuary 2025
Kicking Off 2025: Connect with Our Executive Director, New Merch, and Exciting Plans Ahead!
Read NewsletterOctober 2024
Patient Registry, C-Path Mito Taskforce, Our New Amazon Storefront, and more!
Read NewsletterJune 2024
Leigh syndrome symposium, C-Path mito taskforce updates, Music for Mito and other June news!
Read NewsletterApril 2024
Registry data available in OMOP, Leigh syndrome symposium registration is open, and more news!
Read NewsletterMarch 2024
PDCD registry partnership, ECHS1 research, C-path mito taskforce is growing, Rare disease day recap, and more!
Read NewsletterAnnouncement
Announcement: Our 2nd Registry Paper is PUBLISHED - Interoperability of Leigh Syndrome Patient Registry Data with Regulatory Submission Standards
ReadJuly 2023
Register for Leigh syndrome symposium, C-path press release, new resource, and more news!
Read NewsletterJune 2023
Celebrating 2 years, new website about Leigh syndrome is live, patient registry results presented at Euromit, Conference is coming up
Read NewsletterSeptember 2023
LS symposium recap, Mito Awareness Week, and lots of gratitude this September!
Read NewsletterAugust 2023
Mito awareness week, LS symposium, Mito meeting with C-path, Free genetic testing, and more updates!
Read NewsletterApril 2023
Drug repurposing updates, conference updates, patient registry updates, and more!
Read NewsletterMarch 2023
Leigh Syndrome medical network, family planning guide, clinical trials page, research studies opportunities, conference, and much more!
Read NewsletterJanuary 2023
Corporate advisory council announcement, Empower and Inspire conference is back in 2023 - register now!
Read NewsletterMay 2022
REGISTRATION IS OPEN - EMPOWER AND INSPIRE: Understanding and Accelerating Research for Leigh Syndrome
Read NewsletterApril 2022
SAVE THE DATE - EMPOWER AND INSPIRE: Understanding and Accelerating Research for Leigh Syndrome
Read NewsletterOctober 2022
Conference recap, Registry latest news, Research opportunity, and more updates!
Read NewsletterSeptember 2022
Conference coming up, Grant announcements, Fundraiser, Research opportunities, and more!
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